A family friendly fundraiser event to support our friend, Dylan McDonnell and his journey with Fredrick’s Ataxia (FA).
Live music by:
The East End Boys
The Brain Darts Duo
$10 at the door
We are lifelong friends of Dylan McDonnell. As you may know, Dylan is diagnosed with Friedreich’s Ataxia or FA, a debilitating, life-shortening, degenerative neuro-muscular disorder. In years past, the McDonnell family has organized the McDonnell Music Festival notably raising more than one-hundred thousand dollars, graciously donating all monies directly to the Friedreich’s Ataxia Research Alliance.
FA has no cure. Dylan suffers the progressive loss of coordination and muscle strength. Dylan’s already limited movement is adversely impacted and he relies on the use of a wheelchair. The time has come as the need has never been greater for Dylan to realize the benefit of community fundraising efforts. With your help, we seek to offset costs living with FA, purposefully:
- to promote freedom of mobility and prevalent well-being;
- to maintain and insure an accessible van, to procure its longevity; and
- to produce a night of music and friendly camaraderie featuring local musicians and celebration event to be held at The Queensbury Hotel on Friday, September 30th— Dylan’s 45th Birthday.
As you may relate, our hometown swells with pride. It is important that we recognize one of our own; aptly all together—undeniably—nobody is more deserving than Dylan. We are grateful to be a part of this tight-knit and giving community. Your contribution will absolutely make Dylan’s birthday shine brightest knowing that our fabric is peacefully laced and spiritedly interwoven.
Please join in our celebration. Your gift is certainly appreciated. We applaud your generosity. Thank you!